The story behind the evolution of our educational children’s story. Faber the Dragon is a children’s story about a small child who has a messy dragon living inside of him. Julie Fitzgerald, a fellow Fabry patient, penned the book for her young niece to help explain...
What is Gene Therapy and are you eligible to apply for upcoming clinical trials? Fabry Australia and the Fabry Australia Medical Advisory Committee invited members to join them for an online meeting on 14th September 2022 to discuss upcoming gene therapy clinical...
An evidence-driven proposal for a change in the treatment paradigm for Fabry disease to ensure timely and equitable access to treatment after confirmatory diagnosis. In Australia access to available treatments is managed via the Life Saving Drug Program (LSDP)...
